Data Summary

Last Updated: March 14, 2022

The OneFlorida+ Data Trust is a repository of health-care data from Florida and select cities in Georgia and Alabama that is regularly updated with the inclusion of new partners and data refreshes from existing partners. The Data Trust contains claims and encounter data for Floridians enrolled in Medicaid and robust patient-level electronic health record data from public and private health care systems throughout Florida and in Atlanta, Georgia and Birmingham, Alabama. These data include diagnoses, procedures, medications, patient demographics, unique patient codes for re-identification by network partners, exposome data on the natural, built and social environments, and other data elements in the PCORnet Common Data Model (CDM). In total, the Data Trust contains data for approximately 19.21 million* patients.

Patients
Diagnoses
Encounters
Dispensed Medications
Procedures
Claims

OneFlorida+ recognizes that patients receive their health care in multiple locations and that claims and EHR data are not naturally linked. Therefore, we work with our partners to link each person’s records from multiple health systems and claims to each other. We carry out this work in a way that maintains the privacy of the individual. Patient names, addresses, phone numbers, and so on are not shared among partners. For individual studies, data queries can be highly tailored, and OneFlorida+ staff are enhancing the Data Trust with data elements beyond the PCORnet Common Data Model.

Demographic Breakdown

Gender

Gender
Percent
Male 45%
Female 55%
  • Male
  • Female

Age

Age
Percentage
Infant (<1 year) 1%
Pediatric (1-17 years) 25%
Adults (18 years and older) 74%
  • Infant
  • Pediatric
  • Adult

Race

Race
Percentage
White 46%
Black/African American 18%
Asian 1.5%
American Indian/Alaskan Native 0.2%
Native Hawaiian/Pacific Islander 0.04%

Ethnicity

Ethnicity
Percentage
Hispanic or Latino 24%

 

  • White
  • Black
  • Asian
  • American Indian
  • Pacific Islander

Health Conditions

Health Condition
Number
Hypertension (HTN) 3,231,662
Hyperlipidemia 2,596,308
Asthma 1,846,807
Diabetes Mellitus, Type 2 1,531,866
Depression 1,327,168
Attention deficit hyperactive disorder (ADHD) 684,792
Renal Disease 983,723
COPD 688,277
Epilepsy 367,536
Autism 168,082
Diabetes Mellitus, Type 1 205,725
Stroke (CVA) 294,240
Rheumatoid Arthritis (RA) 174,350
Myocardial Infarction (MI) 189,378
Metabolic Syndrome 70,063
Sickle Cell Trait 75,279
Sickle Cell Disease 32,053
Sickle Cell Disorder with and without crisis 4,252
Sickle Cell Thalassemia with and without crisis 4,146
Methicillin-resistant Staphylococcus aureus (MRSA) (view breakdown) 74,624
Vancomycin-resistant Enterococci (VRE) (view breakdown) 8,688
Cancer 959,301
         Lip, Oral Cavity, and Pharynx 10,847
         Digestive Organs 79,762
         Respiratory and Intrathoracic Organs 50,124
         Bone and Articular Cartilage 5,440
         Skin 127,804
         Mesothelial and Soft Tissue 10,784
         Breast 91,466
         Female Genital Organs 39,595
         Male Genital Organs 85,570
         Urinary Tract 38,407
         Eye, Brain and other Parts of Central Nervous System 23,705
         Thyroid and other Endocrine Glands 21,665
         Neuroendocrine Tumors 4,389
         Secondary Neuroendocrine Tumors 275
         Ill-Defined, other Secondary and Unspecified Sites 31,202
         Lymphoid, Hematopoietic and Related Tissue 89,856
         Multiple Cancer Diagnoses 248,410

* Includes Medicaid payer mix

Exposome Data

Natural Environment
Air toxicants
Meteorology
Built Environment
Green space
Walkability
Food access
Social Environment
Sociodemographic status
Social capital
Crime and safety
Healthcare access