Data Summary

Last Updated: August 01, 2023

The OneFlorida+ Data Trust is a repository of health-care data from Florida and select cities in Georgia and Alabama that is regularly updated with the inclusion of new partners and data refreshes from existing partners. The Data Trust contains claims and encounter data for Floridians enrolled in Medicaid and robust patient-level electronic health record data from public and private health care systems throughout Florida and in Atlanta, Georgia and Birmingham, Alabama. These data include diagnoses, procedures, medications, patient demographics, unique patient codes for re-identification by network partners, exposome data on the natural, built and social environments, and other data elements in the PCORnet Common Data Model (CDM). In total, the Data Trust contains data for approximately 21.19 million* patients.

Patients
Diagnoses
Encounters
Dispensed Medications
Procedures
Claims

OneFlorida+ recognizes that patients receive their health care in multiple locations and that claims and EHR data are not naturally linked. Therefore, we work with our partners to link each person’s records from multiple health systems and claims to each other. We carry out this work in a way that maintains the privacy of the individual. Patient names, addresses, phone numbers, and so on are not shared among partners. For individual studies, data queries can be highly tailored, and OneFlorida+ staff are enhancing the Data Trust with data elements beyond the PCORnet Common Data Model.

Demographic Breakdown

Gender

Gender
Percent
Male 46%
Female 54%
  • Male
  • Female

Age

Age
Percentage
Infant (<1 year) 0.85%
Pediatric (1-17 years) 22.11%
Adults (18 years and older) 77.04%
  • Infant
  • Pediatric
  • Adult

Race

Race
Percentage
White 49.51%
Black/African American 19.56%
Asian 1.65%
American Indian/Alaskan Native 0.20%
Native Hawaiian/Pacific Islander 0.05%

Ethnicity

Ethnicity
Percentage
Hispanic or Latino 23%

 

  • White
  • Black
  • Asian
  • American Indian
  • Pacific Islander

Health Conditions

Health Condition
Number
Hypertension (HTN) 3,914,405
Hyperlipidemia 3,236,586
Asthma 2,042,928
Diabetes Mellitus, Type 2 1,832,344
Depression 1,521,769
Attention deficit hyperactive disorder (ADHD) 782,595
Renal Disease 1,237,806
COPD 781,736
Epilepsy 425,323
Autism 195,903
Diabetes Mellitus, Type 1 229,027
Stroke (CVA) 369,826
Rheumatoid Arthritis (RA) 208,586
Myocardial Infarction (MI) 239,397
Metabolic Syndrome 91,208
Sickle Cell Trait 86,269
Sickle Cell Disease 36,227
Sickle Cell Disorder with and without crisis 4,737
Sickle Cell Thalassemia with and without crisis 4,574
Methicillin-resistant Staphylococcus aureus (MRSA) (view breakdown) 79,492
Vancomycin-resistant Enterococci (VRE) (view breakdown) 10,499
Cancer 1,329,170
         Lip, Oral Cavity, and Pharynx 12,770
         Digestive Organs 105,422
         Respiratory and Intrathoracic Organs 62,704
         Bone and Articular Cartilage 7,554
         Skin 237,757
         Mesothelial and Soft Tissue 16,404
         Breast 119,579
         Female Genital Organs 51,359
         Male Genital Organs 114,451
         Urinary Tract 52,295
         Eye, Brain and other Parts of Central Nervous System 30,358
         Thyroid and other Endocrine Glands 28,802
         Neuroendocrine Tumors 6,369
         Secondary Neuroendocrine Tumors 409
         Ill-Defined, other Secondary and Unspecified Sites 41,379
         Lymphoid, Hematopoietic and Related Tissue 121,066
         Multiple Cancer Diagnoses 320,492

* Includes Medicaid payer mix

Exposome Data

Natural Environment
Air toxicants
Meteorology
Built Environment
Green space
Walkability
Food access
Social Environment
Sociodemographic status
Social capital
Crime and safety
Healthcare access