Data Summary

Last Updated: July 27, 2021

The OneFlorida+ Data Trust is a repository of health-care data from Florida and select cities in Georgia and Alabama that is regularly updated with the inclusion of new partners and data refreshes from existing partners. The Data Trust contains claims and encounter data for Floridians enrolled in Medicaid and robust patient-level electronic health record data from public and private health care systems throughout Florida and in Atlanta, Georgia and Birmingham, Alabama. These data include diagnoses, procedures, medications, patient demographics, unique patient codes for re-identification by network partners, exposome data on the natural, built and social environments, and other data elements in the PCORnet Common Data Model (CDM). In total, the Data Trust contains data for approximately 17.19 million* patients.

Patients
Diagnoses
Encounters
Dispensed Medications
Procedures
Claims

OneFlorida+ recognizes that patients receive their health care in multiple locations and that claims and EHR data are not naturally linked. Therefore, we work with our partners to link each person’s records from multiple health systems and claims to each other. We carry out this work in a way that maintains the privacy of the individual. Patient names, addresses, phone numbers, and so on are not shared among partners. For individual studies, data queries can be highly tailored, and OneFlorida+ staff are enhancing the Data Trust with data elements beyond the PCORnet Common Data Model.

Demographic Breakdown

Gender

Gender
Percent
Male 45%
Female 55%
  • Male
  • Female

Age

Age
Percentage
Infant (<1 year) 1%
Pediatric (1-17 years) 27%
Adults (18 years and older) 72%
  • Infant
  • Pediatric
  • Adult

Race

Race
Percentage
White 46%
Black/African American 18%
Asian 1.4%
American Indian/Alaskan Native 0.2%
Native Hawaiian/Pacific Islander 0.06%

Ethnicity

Ethnicity
Percentage
Hispanic or Latino 23%

 

  • White
  • Black
  • Asian
  • American Indian
  • Pacific Islander

Health Conditions

Health Condition
Number
Hypertension (HTN) 2,922,508
Hyperlipidemia 2,394,655
Asthma 1,760,619
Diabetes Mellitus, Type 2 1,411,456
Depression 1,195,881
Attention deficit hyperactive disorder (ADHD) 639,735
Renal Disease 889,865
COPD 644,793
Epilepsy 341,348
Autism 151,565
Diabetes Mellitus, Type 1 196,303
Stroke (CVA) 269,453
Rheumatoid Arthritis (RA) 160,114
Myocardial Infarction (MI) 175,069
Metabolic Syndrome 62,546
Sickle Cell Trait 69,670
Sickle Cell Disease 30,130
Sickle Cell Disorder with and without crisis 4,026
Sickle Cell Thalassemia with and without crisis 3,951
Methicillin-resistant Staphylococcus aureus (MRSA) (view breakdown) 72,617
Vancomycin-resistant Enterococci (VRE) (view breakdown) 7,925
Cancer 883,779
         Lip, Oral Cavity, and Pharynx 10,351
         Digestive Organs 73,741
         Respiratory and Intrathoracic Organs 45,562
         Bone and Articular Cartilage 5,074
         Skin 119,524
         Mesothelial and Soft Tissue 9,790
         Breast 83,393
         Female Genital Organs 36,292
         Male Genital Organs 76,561
         Urinary Tract 35,364
         Eye, Brain and other Parts of Central Nervous System 21,994
         Thyroid and other Endocrine Glands 20,160
         Neuroendocrine Tumors 4,029
         Secondary Neuroendocrine Tumors 233
         Ill-Defined, other Secondary and Unspecified Sites 28,231
         Lymphoid, Hematopoietic and Related Tissue 83,032
         Multiple Cancer Diagnoses 230,448

* Includes Medicaid payer mix

Exposome Data

Natural Environment
Air toxicants
Meteorology
Built Environment
Green space
Walkability
Food access
Social Environment
Sociodemographic status
Social capital
Crime and safety
Healthcare access