OneFlorida researchers Kathryn Shaw, Myra Smith, Rhonda Cooper-DeHoff, Pharm.D., M.S., and Sujung Choi presented “Roadmap for Collaborative Query Development in PCORnet” at the 2019 Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting held in Washington, D.C. on September 18-20.
Informed by real-world query-development experience, the team mapped out the process for developing queries for distribution across diverse health systems and provided step-by-step guidance to help researchers and other stakeholders manage the process more efficiently.
Presenters Kathryn Shaw and Myra Smith work as data analysts at the University of Florida’s Institute for Child Health Policy. Rhonda Cooper-DeHoff is an associate professor in the department of pharmacotherapy and translational research and the department of pharmaceuticals in the UF College of Pharmacy. She also holds an appointment in the Division of Cardiovascular Medicine in the College of Medicine at UF. Sujung Choi works in pragmatic health systems research, which is part of the Duke Clinical Research Institute at Duke University in Durham, N.C.
This work was initiated by the National Patient-Centered Clinical Research Network (PCORnet) Cardiovascular Health Collaborative Research Group (CVH CRG). The CVH CRG collaborated with the PCORnet Distributed Research Network Operations Center (DRN OC) to establish and document best practices for query development and contribute to CRG capacity to successfully fulfill queries.
PCORnet, which is funded by PCORI, combines real-world data and patient partnerships to perform high-impact research.